Shine’s First Camp Adventure: Flights for Burn Survivors July 2, 2024 Like most toddlers, Shine was filled with curiosity, eager to discover the world, often reaching up high for things she wanted to see up close. In the blink of an eye, one-year-old Shine reached for a bowl of freshly made hot soup sitting on the kitchen counter, pouring the hot liquid onto her upper chest and right arm. “My husband Patrick rushed Shine into the bathroom, and I remember saying ‘cold water, cold water,’’ s… Jessica Hayes Read More »
Remybelle Flies with Angels: Attending the National Organization for Rare Disorders Forum July 2, 2024 Earlier this month, AFW’s volunteer pilots Mariya Anderson and Sanjay Saigal flew AFW’s passenger Remybelle and her mother Belinda to the The 2024 NORD® Living Rare, Living Stronger® Patient and Family Forum in Los Angeles, Calif. NORD stands for the National Organization for Rare Disorders, and gives people affected by rare diseases an opportunity to discover resources and compassionate support. Jaime Pache… Jessica Hayes Read More »